Back to being normal for awhile

I enjoyed the rest of my weekend after getting home late on Saturday. The rainy weather had made all the flights late. On Sunday I didn't do much, just helped my Dad and brother a bit getting organized for his 18th birthday party next Saturday. I am looking forward to it, going to be cold though. I hope it fines up as it has been raining here on and off for days.

I went back to work on Monday. Been working overtime as it is really busy at the moment. I need the money as well. Counting down until I go for my drivers licence. Three weeks and 5 days to go. I can't wait. I need to do some more practice on reverse parking, but I think everything else is OK. I have also decided that I will use my own car for the test as it is mostly all I have been driving for the last 5 months.

Out of hospital

About lunch time yesterday I was let out of hospital. But we can't get a flight home until later this afternoon. So I am wasting time sitting around here at Ronald McDonald House organizing the rest of my weekend when I get home. I will only have one day of the weekend left, then back to work.

I have been having slight headaches, but I really think it is dehydration due to not being able to drink water when I was nil by mouth for two days in hospital. Yesterday when the surgeon came to see me he said he had requested the radiologist to contact me within two weeks to have the angiogram done. I have no idea what he means by that, if I have to come back to Brisbane to have it done or have it at home. Also he gave me an appointment card to see him here on 18th July. That is my 17th birthday, and there is no way I want to be down here. I just get so frustrated. I also am going for my drivers license on 23rd July. You have to book 6 weeks in advance, so I definately want to be here for that. After I get it I don't care if I have to come back then. All I want is my drivers license.

Today I want to get home then go out with my friends.

Still Waiting in hospital

There is no change in my time wasting. I have again fasted all day only to be told at about 4pm that I can eat. I did get a visit from a doctor who I don't know, from the surgeons office to say that they are in conference this afternoon deciding whether or not to do the angiogram. How many specialists does it take. I am starting to run out of time here, wasting time. I either want it done and move on or just send me home. Tomorrow is Friday. I hope they don't leave it too late and can't get me home. I have plans for this weekend starting tomorrow night. I have been looking forward to it ever since last weekend.

Bored! Bored! Bored! Running out of things to do, and that was yesterday.

In hospital again..............

I have been in Brisbane just for usual checkups. On Monday got the all clear from my surgeon on the last lot of surgery. Seems everything went well.

So yesterday we booked out of our room, our flights were already booked, I just had appointments with my renal consultant. Everything was great until mum mentioned the long weekend when I have headaches and vomiting for three days. He then rang down to the nero surgeon for advice what to do. He remembered me, and said even though it was over a week ago, he got to C-T scans organized, one was with the dye, then I was admitted through emergency and had a lumber punch. I don't know what the results are yet the CTs I mean, but the lumber punch was clear. They are checking for small bleeds, maybe just warning ones. After the big bleed last year they think it is worth checking. But I am so pi##ed off with mum. Why did she have to tell them. I don't know when I even will be allowed out of hospital now. Our flight last night was cancelled and mum managed to get back into Ronald McDonald House. I am back in my old room. Yep same room in Wattlebrae Ward. Even the staff still remember me. I was only here two months ago. I am waiting to have a angiogram. So as usual it is nil by mouth. People complain about hospital food. In all my stays I rarely get to eat it. I have been waiting all day for this angio, it is after 5pm now and still haven't done it. I just want to get home as I have things I want to do.

I really wished mum didn't say anything. Not sure what is going to happen. I feel well but hungry. Hungry Jacks sounds pretty good but they won't let me eat until after the procedure. I am very cranky. Still haven't seen my main consultant. Maybe tomorrow.

Back to Brisbane in a few days

Last weekend was a long weekend. I spent the Friday, Saturday and some of Sunday in bed. No wonder my mum and doctors call me the weekend warrior. Headaches and vomiting. I have no idea why except I felt like s##t. But I seem much better now but I still get nauseous. I am also finding it very hard to get out of bed. I am just so sick of everything.

I am still here !

I know, it has been awhile since I posted. My life has been so busy. After returning from my operation I stayed home for a week before I was able to return to work. No work, no money. Gets boring at home as well.

I returned to Brisbane for the usual consultants visits. I was unable to see the surgeon due to a last minute cancellation of my appointment, so I wasted a day. There was nothing Mum and I could do about it so we got on a bus and went to the city. Queen Street Brisbane. Heaps of people but nothing too much that interests me. I noticed there are a lot of EMO types there. I can never work out why these people look at life so differently. Why would you want to shorten what you have left. Waste of time in my eyes.

Saw my two consultants on the Tuesday. They seemed quite happy how things were going. No major problems.

Kidneys down to 81% and still putting out too much Protein. Dosage of medication increased yet again.

The rest. I still have a toe infection. Did more blood tests, but all other test results seem good.

Medication changes: Reduction of Azathioprine from 50mg to 25mg (Was on 100mg a few months back)

Reduction of Prednisolone: now on only 15mg

Returned home and back to living. My next Brisbane visit is for three appointments 18^th and 19^th June.

Generally I am feeling OK.

Looking forward to next month to hopefully get my drivers licence. Also my birthday next month as well.