Well I got through that week

I have mostly been fine. Very snappy though. Sick of taking tablets. They are starting to make me sick again. What good things happened this week might be better. A bit boring last weekend, I don't see my friends anymore, I don't think they want me around as I am too much of a problem. They are all too busy to see me. Can't blame them. But I did go out in a boat fishing with my dad. Didn't even get a bite.

My bag is driving me nutz. I wish I were normal like everyone else. I have been spending time on my computer with some online games. Drifiting. I am tired though. New medication starts on Monday. More tablets. I wonder if they will make me sick to.

I got a digital camera last weekend. It is not mine but I have full access to it, so I will be trying to work out now, when I get out of the house, what to take photos of. Maybe start a photo blog. Yeah, who would ever look at it anyway. It is Friday, guess what I am doing on the weekend. NOTHING

Back from Brisbane for this month

Well, I have been back for my last chemo. The sixth one in six months. I am glad that is over. Only got a bit nauseous, nothing bad. Saw the doctor, my consultant was away, but I knew that. All blood tests seem OK. Ancas won't be known until the end of the week. I usually don't hear anything unless there is a problem. But I have to go back next month and have blood tests and a 24 hours urine test. They want all the results before they see me, but the tests are to be done in the hospital. For me that means, two wasted days between tests and doctors visit. So in the meantime, it is all systems go. That is a month away, so I am not going to waste any time. Now is the time to live, between doctors and hospital visits. I feel OK, sleeping alot though, but not now that I am home.

I am going to see if I can get myself a digital camera and start taking some photos, not of me, as I don't look anything like I used too. I have not gained any more weight in the last month, so that is a plus. But I still feel fat, and look fat. I used to be skinny and full of energy, now I have slowed down, I don't know whether it is the prednisone or just me. Anyway, life is out there and I am going to enjoy the rest of the next three weeks.

Off to Brisbane again

My mum helps me here, as I get very short tempered, have no patience and a bad temper. The drugs I think. I can't remember being like this before.

I will try to keep posting updates as I need to. I am off to Brisbane for my last cyclo treatment on Monday 18th. That will be 6, I had 4 retuximab in May/June, one each week for 4 weeks. I am wondering what the new drug will do to me. I can't remember what it is, but I will know next week after my treatment and consultants visit.