Friday 20 October 2006

Home Again

I have been to Brisbane and I am back again. I love coming home.

The visit to my consultant was all good news. Well mostly, except that I will probably have to have Vitamin B12 injections every 3 months for the rest of my life. Oh well, you get that I suppose. But all other tests looked good. That is a relief. But more medication changes. I also have to return on 12th November. I won't be long and that visit will be here. Just a few things I have to do, one is getting my fitness up. I don't know how I am going to do that, I go all day every day doing things I want to do, and exerciseing is just not me. But I will see what I can do.

I stayed at Ronald McDonald House in Brisbane. It is right beside the hospital, so nice and handy. I guess I am a bit embarrast about how I look, but the staff at the house know me and I don't feel so bad. They remember how I used to look a few months back. (Better than now)

Anyway, I usually play me xbox, not much else to do, everything in cities costs money, so we did go shopping, mainly for some clothes as mine are too small. Mum got me some new boardies and shirts, at least now I can do them up properly. Everytime we go to the house, we are playing a game, which room will we get this time. Mum and Dad have been in quite a few of them now LOL, but the room we had was great, but the TV was an old one and didn't have the connections for my xbox But there are other TV's in the lounge area so I could have used them. But I play while I am in bed, so as not to annoy anyone. So no xbox this time.

But I have an elderly friend who has been raising money for the House, and he gave me $210 to take down and donate. I felt really good about that, they really need the money. All the cash donations given there are spent there, so to me that is great. I was so excited to do it. Hopefully there will be a bigger donation next month when I go down, but I was told not to get This is really exciting for him, he is just as wrapped as me. We would really love to make a difference for the people who use this place, including me and my family. You see early next year I will have to go back into hospital, I hope not before then, but I want to get this s##t bag off. It is so frustrating, now with summer coming, I usually love to swim, but too embarressing for me. Some people look at me like I am Herman Munster, you know with the bolts through his neck and a big scar on his head. I don't have the bolts but I have the scar.

I will blog again when I wish to talk to myself again. Actually one day I will look back at this is laugh. Well maybe not me, but someone will get a laugh out of it. At least I would have left some sort of impression on the web, as I am only a speck in the worldly scheme of things. LOL

Sunday 15 October 2006

Another month. Back to Brisbane tomorrow

I had not a bad week. Craig Lownes won Bathurst for anyone who cares. I do as he drives a Ford.
I am back to Brisbane Hospital and staying at Ronald McDonalds tomorrow. More tests and to see my consultant. Gets a bit boring, but I will take my Xbox, as usual. Hopefully I will be back home on Tuesday night. I feel OK, but sometimes I am the last to know what is happening in my body, until it is too late. I am taking the camera and going to take heaps of photos. The city and people, I live in the bush. Very different for me down there, but ok to visit, but I am glad to get home.
I will keep writing here just to let people know what is happening and how my treatment is going.

Monday 9 October 2006

Another week blown to the weeds

I just read last weeks post. I was cranky when I wrote that. Actually I ended up having a half decent weekend. I went to the beach on Sunday with my family and some friends, where I was able to drive my car once we got on the beach. I love the ocean and the beach. But the sun really burns me, so I don't stay out too long in it. This was the first time I have driven on the beach. It was fun. I wish I had my drivers licence. After Christmas I will be old enough to get a learners, so I can't wait. I spend hours cleaning my car when I got home.

Last week went really fast. I have had no bad things with the new medication that I started last Monday. Only slight headaches by Friday, but it was probably just because I stayed up too late. Last night I had a couple of mates come out and stay over. We sat around a big fire and mainly chatted. We snuck in a couple of drinks. Mum and Dad went out to dinner.

But today is Bathurst. I love the car racing, and have spent most of the day watching it on TV. I go for the Fords. I am writing this as mum reminded me I hadn't updated since last week. The pace car is out and has got boring so I decided I would do this while I am waiting.

Next Sunday we are back to Brisbane. More tests and consultants appointments. I feel OK at the moment. But I still get a bit breathless, like last night when I was chopping firewood. I could not do much. But, I suppose you get that.

Racing started again. GO THE FORDS (Craig Lownes)