Still Waiting in hospital

There is no change in my time wasting. I have again fasted all day only to be told at about 4pm that I can eat. I did get a visit from a doctor who I don't know, from the surgeons office to say that they are in conference this afternoon deciding whether or not to do the angiogram. How many specialists does it take. I am starting to run out of time here, wasting time. I either want it done and move on or just send me home. Tomorrow is Friday. I hope they don't leave it too late and can't get me home. I have plans for this weekend starting tomorrow night. I have been looking forward to it ever since last weekend.

Bored! Bored! Bored! Running out of things to do, and that was yesterday.

In hospital again..............

I have been in Brisbane just for usual checkups. On Monday got the all clear from my surgeon on the last lot of surgery. Seems everything went well.

So yesterday we booked out of our room, our flights were already booked, I just had appointments with my renal consultant. Everything was great until mum mentioned the long weekend when I have headaches and vomiting for three days. He then rang down to the nero surgeon for advice what to do. He remembered me, and said even though it was over a week ago, he got to C-T scans organized, one was with the dye, then I was admitted through emergency and had a lumber punch. I don't know what the results are yet the CTs I mean, but the lumber punch was clear. They are checking for small bleeds, maybe just warning ones. After the big bleed last year they think it is worth checking. But I am so pi##ed off with mum. Why did she have to tell them. I don't know when I even will be allowed out of hospital now. Our flight last night was cancelled and mum managed to get back into Ronald McDonald House. I am back in my old room. Yep same room in Wattlebrae Ward. Even the staff still remember me. I was only here two months ago. I am waiting to have a angiogram. So as usual it is nil by mouth. People complain about hospital food. In all my stays I rarely get to eat it. I have been waiting all day for this angio, it is after 5pm now and still haven't done it. I just want to get home as I have things I want to do.

I really wished mum didn't say anything. Not sure what is going to happen. I feel well but hungry. Hungry Jacks sounds pretty good but they won't let me eat until after the procedure. I am very cranky. Still haven't seen my main consultant. Maybe tomorrow.

Back to Brisbane in a few days

Last weekend was a long weekend. I spent the Friday, Saturday and some of Sunday in bed. No wonder my mum and doctors call me the weekend warrior. Headaches and vomiting. I have no idea why except I felt like s##t. But I seem much better now but I still get nauseous. I am also finding it very hard to get out of bed. I am just so sick of everything.

I am still here !

I know, it has been awhile since I posted. My life has been so busy. After returning from my operation I stayed home for a week before I was able to return to work. No work, no money. Gets boring at home as well.

I returned to Brisbane for the usual consultants visits. I was unable to see the surgeon due to a last minute cancellation of my appointment, so I wasted a day. There was nothing Mum and I could do about it so we got on a bus and went to the city. Queen Street Brisbane. Heaps of people but nothing too much that interests me. I noticed there are a lot of EMO types there. I can never work out why these people look at life so differently. Why would you want to shorten what you have left. Waste of time in my eyes.

Saw my two consultants on the Tuesday. They seemed quite happy how things were going. No major problems.

Kidneys down to 81% and still putting out too much Protein. Dosage of medication increased yet again.

The rest. I still have a toe infection. Did more blood tests, but all other test results seem good.

Medication changes: Reduction of Azathioprine from 50mg to 25mg (Was on 100mg a few months back)

Reduction of Prednisolone: now on only 15mg

Returned home and back to living. My next Brisbane visit is for three appointments 18^th and 19^th June.

Generally I am feeling OK.

Looking forward to next month to hopefully get my drivers licence. Also my birthday next month as well.

My days in hospital

Friday, April 13, 2007

I was up early this morning and moved to have a shower as surgery apparently rang through and said to prepare me as they were sending wards men up to get me. So today is the day.

I got back to my room mid afternoon, relieved that it is over, but the pain is starting to kick in. I am on morphine. I don’t want to take it but, the pain is becoming too much. I tried talking on MSN, but I keep falling to sleep. I may be a bit better tomorrow.

Saturday, April 14, 2007

Had a bit of a rough night, but awake early this morning. I got up and walked to my bathroom. I have a single room, which is great I only have to put up with myself, and have my own bathroom and toilet. I am still on morphine, and the surgeon came to visit this morning. I am now on clear fluids. So at least I can have more that just a couple of icecubes to suck on. Seeing it is the weekend, I am back chatting on MSN and listening to my mp3 player. I tend to drop off occasionally though.

Sunday, April 15, 2007

Not really having a good day. Feeling quite sick. Slept most of the day.

Monday, April 16, 2007

Feeling good today. Very sore, but relieved. Went for a walk around the ward then back to bed. Something funny happened today. I go to sleep with my mobile phone in my hand as I am constantly texting friends. We I got out of bed this morning the nurse suggested I may as well have a shower. By the time I did and returned to bed, my sheets had been changed and bed made. I didn’t think about it at the time. Later in the afternoon I went to text some friends and couldn’t find my phone. Thinking back I knew I had left it in my bed. I asked the nurse about where the dirty sheets might be because I had lost my phone. Luckily there were still on the ward and put into their own bags for each room. They got the bags out, and the first one they checked as they pulled the sheets out my phone hit the floor. I don’t know who was more excited, me or the nurse. But all the staff seemed to get a laugh out of it. At least I got my phone back. The battery was flat, but a quick charge fixed that.

Finally on Wednesday 18^th I was released from hospital. Mind you I walked the 300 metres to Ronald McDonald House and spend the rest of the day sleeping.