Been on holidays. Can you tell!

I have been really slack since I last posted. This year I am going to be more active here.LOL Famous last words. I need to see if I can get a blogger from gmail. I am told that they are easier to use. But I will be back.

How slack am I

I have been back to Brisbane for my monthly visit. LOL I really wish I did not have to do this, but, if I don't who knows what will happen. I haven't been that well since my last hospital stay a couple of weeks ago. But when we arrived in Brisbane last Sunday, I nearly vomited in the taxi, luckily they pulled over when I asked, as I fertilized a garden before getting to Ronald McDonald House where the friendly staff was waiting for us. After showing us to our room, I went to bed feeling nauseous with a headache. I woke a couple of times during the night but by morning was OK.

We did our usual visits to the consultants, but this time I had to see the renal consultant, my kidneys are doing weird things again. Too much protein by heaps and rising on previous tests. So more tablets to take and more blood tests. Back to my main consultant, not happy about the headaches and vomiting. Was thinking about keeping me there, but really did not want to as I seemed OK. plus all the blood tests were OK. They have had the CT scan sent down and are going to review it and mum is to let them know if I get sick again. But so far so good. I have had a headache since, but not too bad. I don't know what is going on with me.

I never did get to upload those photos, but I might have a go this time. I have never done this before. I mainly play online games on the computer. I met so many people from all over the world. But when I go to Brisbane, I have to play my xbox as I don't have adsl or a computer with me. I have been on the internet cafe, but you can only open one window at a time and the time goes so fast. Two dollars for 20 minutes. I am used to being on it for hours, and the time goes so fast. I would love to have access to free broadband with my own computer, but that is not possible. I hear over at the Children Hospital they have internet access, but when I am admitted I am in the Royal Brisbane. I also can't have my xbox in hospital as the TV system you have to pay for and there are no access points for it. Sucks.

I have been doing some fishing the last few weekends. One day I will catch a barra. one day.

This is where I go fishing for barra, but I have not caught one yet. But I will keep trying.

What a waste last weekend was

Here it is another week gone. At least this weekend I feel much better. I worked all week last week just to be in hospital for the weekend. I had a headache and vomiting. By lunch time I could not handle it any more. Everytime I moved, I was sick. But I was admitted at our local hospital under, I think, instructions from my doctors in Brisbane. A CT scan was done, chest x-rays, blood tests. Then attached to a drip yet again and up to a ward in the hospital. By late that night I was feel much better, and apparently all the tests showed that everything was OK. Maybe it was a 24 hour bug, don't know. But I felt like s##t. I was let out on Sunday night. But my parents would not let me go to work on Monday. Ah well you get that. So I milled around home all day Monday annoying my father. LOL But I went to work the rest of the week.

Mum just reminded me that next weekend we are off to Brisbane again. Blood tests to be done this Monday. I means that I have to squeese heaps of things in this weekend. It is raining at the moment, so I thought I would catch up on this. Suns out already, we didn't get much.

Home Again

I have been to Brisbane and I am back again. I love coming home.

The visit to my consultant was all good news. Well mostly, except that I will probably have to have Vitamin B12 injections every 3 months for the rest of my life. Oh well, you get that I suppose. But all other tests looked good. That is a relief. But more medication changes. I also have to return on 12th November. I won't be long and that visit will be here. Just a few things I have to do, one is getting my fitness up. I don't know how I am going to do that, I go all day every day doing things I want to do, and exerciseing is just not me. But I will see what I can do.

I stayed at Ronald McDonald House in Brisbane. It is right beside the hospital, so nice and handy. I guess I am a bit embarrast about how I look, but the staff at the house know me and I don't feel so bad. They remember how I used to look a few months back. (Better than now)

Anyway, I usually play me xbox, not much else to do, everything in cities costs money, so we did go shopping, mainly for some clothes as mine are too small. Mum got me some new boardies and shirts, at least now I can do them up properly. Everytime we go to the house, we are playing a game, which room will we get this time. Mum and Dad have been in quite a few of them now LOL, but the room we had was great, but the TV was an old one and didn't have the connections for my xbox But there are other TV's in the lounge area so I could have used them. But I play while I am in bed, so as not to annoy anyone. So no xbox this time.

But I have an elderly friend who has been raising money for the House, and he gave me $210 to take down and donate. I felt really good about that, they really need the money. All the cash donations given there are spent there, so to me that is great. I was so excited to do it. Hopefully there will be a bigger donation next month when I go down, but I was told not to get This is really exciting for him, he is just as wrapped as me. We would really love to make a difference for the people who use this place, including me and my family. You see early next year I will have to go back into hospital, I hope not before then, but I want to get this s##t bag off. It is so frustrating, now with summer coming, I usually love to swim, but too embarressing for me. Some people look at me like I am Herman Munster, you know with the bolts through his neck and a big scar on his head. I don't have the bolts but I have the scar.

I will blog again when I wish to talk to myself again. Actually one day I will look back at this is laugh. Well maybe not me, but someone will get a laugh out of it. At least I would have left some sort of impression on the web, as I am only a speck in the worldly scheme of things. LOL

Another month. Back to Brisbane tomorrow

I had not a bad week. Craig Lownes won Bathurst for anyone who cares. I do as he drives a Ford.
I am back to Brisbane Hospital and staying at Ronald McDonalds tomorrow. More tests and to see my consultant. Gets a bit boring, but I will take my Xbox, as usual. Hopefully I will be back home on Tuesday night. I feel OK, but sometimes I am the last to know what is happening in my body, until it is too late. I am taking the camera and going to take heaps of photos. The city and people, I live in the bush. Very different for me down there, but ok to visit, but I am glad to get home.
I will keep writing here just to let people know what is happening and how my treatment is going.