Still alive and kicken

My mum came round early this morning got me outa bed. I forget it was her birthday today, but she came to remind me to post here. Been gonna for awhile but jst never got to it. I didnt realize it had been so long evey day just runs into another.

Usualy it is my friend who helps us out with things, but he died. I grew up with him always around. Yesterday was the last time I went to his place. We took his ashes. I used to visit him when I could, my car broke so I hadn't been there for ages. but he was staying with mum anyway. Some of his internet friends sent some money through mum to help with some costs. Others I know get unemployment benefits but I don't because I can't work fulltime so mum pays for all she can. I want to thank you it is hard to as I dont no you. Mum went to give it all to me in one lump as you sent it to me but I would only waste it. We did buy some food but I asked mum to look after it. I have to go to Brisbane soon so we will need some money to get there and home again. i dont think about it as everyday is really just enother day

I havent been to docs for a long time now but im still here. Had hernia op just after my birthday last year. No problems now with it. Still got my girlfriend and we both turn 19 this year haha. Still play xbox live sometimes don't have my car anymore. Well I still have it but it has a broken diff. It has been off the road now for months deregistered. Trying to sell it but who woud buy it. All my subs and CD player are still in it. They work so some one might buy it just for the beatbox haha

Hi guys well its nearly the start of June and its nearly my girlfriends birthday she will be 18 on the 31st .. yay :) . Any way things are looking up, I finally got a few members on my forum and
I even added a chat box u might catch me on it :D .

Now what have I been up to, well a fair bit since i last posted ... I bought some new speakers for my car and a CD player. I managed to install them all by myself ...:O haha Apart from that I have been making my forum and playing my xbox .

My concerns :
Fuel Prices: Well the price of fuel is really high here it is like $1.58 a litre!
My hernia: I have just learnt it is because I gained and lost so much weight, and it is common in weggies to get them. So yeh yet another blow haha. But like I said, things are looking up. Anyway I am going to Brisbane for checkups on the 30June .. wish me luck thats it for now people I am going to spend the day playing xbox haha :D

Living but Bored :P

Hi guys/girls I have just found something to fill in my long hours of boredom. So if you want to talk to me u will prob find me on there
Join my new forum I have created by clicking here >TREVS FORUM.. this is what I do in my spare time now :D . Trev> .. ps I am looking for some admin to help

Still here

It’s been ages since I last posted here. But things are looking up sort of. Now what have I been up to. What have I been up to? Not much. I have moved into town in a unit. Saves petrol LOL I spend most days playing xbox and watching dvds. Not really exciting.

Health wise. Could be better. I went to Brisbane last month for checkups and seems that my lungs are not working as well as before. So now on ventilion. I have had my hearing tested again as well, decreased since last test in 2006 one ear the other they say is OK. But last week a hernia appeared, well that is what they think it is. Back to the doctors on Monday to see what they are going to do about it. Probably surgery sometime. But in the meantime I am taking it easy.

Looking forward to my girlfriends 18^th in a couple of weeks. Then it won’t be long until mine.

Not much exciting has happened to me so not much to say except I am still around.

Made it to Prom Night

This would have been my prom night, but I haven't been to school for 3 years. So I escorted my girlfriend to the Prom. Went to the after party and had a great time.

Not a good month

Well I had a shocker of a month. Things aren't going the best due to many things that have gone wrong. Health is OK no problems, but everything seems to be getting on top of me.

I haven't been to work for a couple of weeks. Seems whatever I do I stuff up. I don't know what I am going to do. I am broke now and probably don't have a job. Who will ever employ someone like me. I have done some minor things that have blown out to be something big, I am falling further but who cares.

One good thing is I have a new girlfriend. Been seeing here a couple of months now. I enjoy spending time with her and doing stuff.

Next month I am off to Brisbane again for my check ups and also that test with the camera down my throat to my small bowel to see why I have lost so much weight. I am a bit concerned about that test, but it will show if anything is wrong but if there is there in nothing I can do about it. Just something else to worry me.

I just wish it was all over. Next month is not going to be any better I can feel it already.

Monthly visit to Brisbane Consultants

That month goes so fast. I have just returned from Brisbane on Wednesday. All my blood and urine tests are done a week before we go down. They were all good. Well good for me anyway nothing drastic. No change in the prednisone dose. Still 3mg. Renal results, back up to 65% function, two weeks before had dropped to 40%. Seems that I need to drink more water as dehydrating can affect the results apparently. I now have to do these tests every two weeks and have the results sent to Brisbane.

The only problem at the moment is my weight loss. I have been eating anything and everything but I lost another 1.5 kg. I now weigh 59kg. Last month I lost 6.5kg I am 178cm tall. I really need to buy some new clothes and they are all to big. Even taking prednisone this is happening. My main consultant that manages me is making a booking for me to have a camera down my throat just to check and see if anything is happening. He said they will probably find nothing but they have to check it. I am the unknown. Maybe I am meant to be this skinny. Some of my friends are calling me rag. I just hang there.

Other than that it was a good result. They are also talking about after the next one then maybe only seeing them every two months. I hope so. I know I am costing my family heaps and all the time I have off work must be hard on my boss. I am not exactly what you can call reliable. So next visit to Brisbane is depending on a letter about that camera test when it can be done and they will book consultant appointments for the same time.

In the meantime I have been enjoying the warmer weather and swimming at the beach. I haven't been swimming for so long. A sh## bag hanging off you guts isn't the best. I am so glad that it is gone. I had a dream the other night that it was still there. Actually it was a nightmare.

Well I am off to bed. There is a whole new day tomorrow and i have some plans to enjoy it.

Camera and wallet back

I feel great. I have been working hard and getting out a fair bit. Weekends go so fast but I fit as much in as I can. Stangely I got my video camera and wallet back. Not together. The wallet was left in the mailbox. License and cashcard there but the cash gone. At least I got something. But I don't know who really took it. I think I know but I can't prove it.

Video camera was left on our driveway. Tape gone and memory battery gone. But we got a new one and charged it up and it works. So new tape in and even though it is scratched at least it works.I know who took it, but they denied it. Then they said they did take it but bought it back a few days after. But it didn't show up here until three weeks later. Strange.

Thought I would try to upload a video

I was just mucking around and saw that you can upload videos. So I thought I would give it a try. I have not got any recent ones because the video camera I got for my birthday last month got stolen and I only had it for two weeks. I wish the people who stole it would give it back.

This is a video of me fishing back in the beginning of the year. We were having fun catching sharks.


I have been eating heaps. Also going to work everyday since I got back from Brisbane. I went to a 4WD day on the weekend. Missed my video camera, could have showed here what we watched. It was Exteme Competition.

Back in Brisbane again.

A month has gone so fast. I haven't been home much and when I have I have been sleeping. So now that I am sitting around at RMH between appointments I will update my blog.

What have I been doing? Driving, 4WDing. I got a permit for a beach near where I live. So most weekends I am there camping. I bought new tyres for my car. Now I am broke. I also haven't been to work much. I don't know why. I just can't see any future at the moment. Everything I do never turns out. I have had my video camera stolen, I got it for my birthday. Only had it two weeks and someone took it. I lost my wallet with $50 in it that wasn't my money, but given to me to pick up a car part the next day. It also had my drivers license and bank card in it. So I had to cancel the card and get a new replacement license. That cost me $26. Seems everything I do these days goes wrong. I am just fed up with everything. I feel like punching something. I just loose it in a snap.

I am back in Brisbane for a bone scan and my consultants visit. I was weighed this morning for the bone scan, I have lost 7 kg in a month. My consultants this afternoon I don't think are going to like that. I now weigh 56kg. But I also have a flu, so this might be the problem. But I can't eat much. I feel really hungry, start eating but after a couple of mouthfulls, I feel full. If I eat more I feel sick.

Nearly time to go so I will post later.

Today is DL Day!!!!!!!!!!!!!!!!!!!!

To be honest I didn't sleep well. I am having all these doubts that I will do the wrong thing. Stupid dreams. I am up and dressed. My test in in 2 1/2 hours.

Hopefully the next time I post, I will have my Drivers License. (Not too much to ask I don't think anyway) This is my goal for years now. Please... let me do it right....

Wish me luck.

Getting nervous now!!!

I am off to bed early, as tomorrow is THE DAY. I never thought I would be so nervous. I have practised my hand brake starts and reverse parking. I think I did OK. But I am worried on the day I will stuff it up. I have never been good at exams or anything. I know I am ready, but I hope the instructor can see that.

Hopefully I will sleep well.

Home Again

Made it home in time for my learner's lesson.

So far everything is working to plan. I was a later of sweat during the drive. Not used to their car either. But it is another step closer to getting my drivers license. Roll on Monday. I am going to practise all weekend.

It's my birthday!!!! Finally 17 years old

Here it is my birthday. I am now 17 years old.

What did I do for my birthday? I had to be different. I spent the day as an outpatient in Royal Brisbane Hospital Xray Imaging Department being prepared, having an angiogram and then in recovery. I guess not many people have that hey! But I was allowed to return to Ronald McDonald House where I am right now. Good news though. The results of the angiogram, nothing wrong, everything looks great, so the nero consultant said. He did say he wants a MRI next year. "Next year" that sounds promising. I am happy with the results.

Yesterday I also saw the Thorasic registrar, (as my main consultant has left RBH and has gone to another hospital, I will miss her. I would have liked to thanked her) ancas are both negative, which is good. I have also had my steroids reduced again, now 10mg. I am also no longer on Asathyapran (immune suppressant) Great, less tablets. But then to my Renal appointment. Protein still not getting any better. Added a new medication plus keeping prindaprill, I am on 10mg morning and 10mg night. Mum knows what it is but she has already gone to bed.

Sleep in day tomorrow. Go home Friday and have a learner lesson to help me prepare for my driving license test on Monday. Plus the weekend to practise. I am starting to get nervous now.

Maybe when I get home Friday I will get a present for my birthday!! So far nothing. Oh well!

Busy Busy Busy

Since I last posted things have been going OK. Except last Monday, I ended up with a headache and came home from work and went to bed. By late the next day I was fine. The weather here has been cold so I am thinking maybe it is because the plate in my head get cold and that starts it. I really don't know.

I had a great weekend though. This weekend has been OK so far. I only have just over a week to got until my drivers test. I can't wait. But I am having my birthday in hospital having that angiogram. How lame is that! We have tickets to fly home on Friday, so I am sure hopeing that everything is OK and we do. I will be really pPPPP off if this doesn't happen. I have been waiting forever for this day. My freedom.

Off to Brisbane on Tuesday, fingers crossed they don't find anything.

Looks like I am off to Brisbane again

But not until 17th. My normal consultants appointments. Thorasic and Renal. Mum was contacted today by the Radiologist from Royal Brisbane Hospital, I am booked in to have this angiogram on the 18th. Yep, my 17th birthday. I just hope nothing goes wrong as I want to be back home before 23rd. That is Drivers License test day. So I should be coming back home on Thursday 19th. I feel well so I hope everything is OK. But nothing is going to stop me from taking the test. NOTHING.

Where do I begin?

Last weekend we had my brothers 18th at our place. I had been looking forward to it for ages. You wouldn't believe it. Woke up Saturday morning. Headache. Took a nurofen , which I don't think I am allowed, but went back to bed and slept till lunch. Headache gone. Was the best party. Heaps of people seems there were randoms everywhere. But no problems. We had a DJ and a strobe light that Had and I bought on ebay. Total success. Danced the night away and a few drinks and heaps of fun. Everyone left after midnight to head off to town to the clubs. But me and a couple of mates stayed home and later picked Had up in town after the clubs were shut. Clean up was a pain. I have posted a photo of me and my family. I am the little fellow in the blue suit. LOL



The cake was great. A pair of tits!! LOL Had to be different.



Other than that I just seem so busy. By the time I go to work come home talk on the internet and phone get some sleep. Then it is time to go to work again. Tomorrow is Friday and hopefully it is looking like another busy weekend.

Getting closer to my drivers licence test. 17 days. That must mean two weeks till my birthday. hint hint

Back to being normal for awhile

I enjoyed the rest of my weekend after getting home late on Saturday. The rainy weather had made all the flights late. On Sunday I didn't do much, just helped my Dad and brother a bit getting organized for his 18th birthday party next Saturday. I am looking forward to it, going to be cold though. I hope it fines up as it has been raining here on and off for days.

I went back to work on Monday. Been working overtime as it is really busy at the moment. I need the money as well. Counting down until I go for my drivers licence. Three weeks and 5 days to go. I can't wait. I need to do some more practice on reverse parking, but I think everything else is OK. I have also decided that I will use my own car for the test as it is mostly all I have been driving for the last 5 months.

Out of hospital

About lunch time yesterday I was let out of hospital. But we can't get a flight home until later this afternoon. So I am wasting time sitting around here at Ronald McDonald House organizing the rest of my weekend when I get home. I will only have one day of the weekend left, then back to work.

I have been having slight headaches, but I really think it is dehydration due to not being able to drink water when I was nil by mouth for two days in hospital. Yesterday when the surgeon came to see me he said he had requested the radiologist to contact me within two weeks to have the angiogram done. I have no idea what he means by that, if I have to come back to Brisbane to have it done or have it at home. Also he gave me an appointment card to see him here on 18th July. That is my 17th birthday, and there is no way I want to be down here. I just get so frustrated. I also am going for my drivers license on 23rd July. You have to book 6 weeks in advance, so I definately want to be here for that. After I get it I don't care if I have to come back then. All I want is my drivers license.

Today I want to get home then go out with my friends.

Still Waiting in hospital

There is no change in my time wasting. I have again fasted all day only to be told at about 4pm that I can eat. I did get a visit from a doctor who I don't know, from the surgeons office to say that they are in conference this afternoon deciding whether or not to do the angiogram. How many specialists does it take. I am starting to run out of time here, wasting time. I either want it done and move on or just send me home. Tomorrow is Friday. I hope they don't leave it too late and can't get me home. I have plans for this weekend starting tomorrow night. I have been looking forward to it ever since last weekend.

Bored! Bored! Bored! Running out of things to do, and that was yesterday.