Still here

It’s been ages since I last posted here. But things are looking up sort of. Now what have I been up to. What have I been up to? Not much. I have moved into town in a unit. Saves petrol LOL I spend most days playing xbox and watching dvds. Not really exciting.

Health wise. Could be better. I went to Brisbane last month for checkups and seems that my lungs are not working as well as before. So now on ventilion. I have had my hearing tested again as well, decreased since last test in 2006 one ear the other they say is OK. But last week a hernia appeared, well that is what they think it is. Back to the doctors on Monday to see what they are going to do about it. Probably surgery sometime. But in the meantime I am taking it easy.

Looking forward to my girlfriends 18^th in a couple of weeks. Then it won’t be long until mine.

Not much exciting has happened to me so not much to say except I am still around.

Made it to Prom Night

This would have been my prom night, but I haven't been to school for 3 years. So I escorted my girlfriend to the Prom. Went to the after party and had a great time.

Not a good month

Well I had a shocker of a month. Things aren't going the best due to many things that have gone wrong. Health is OK no problems, but everything seems to be getting on top of me.

I haven't been to work for a couple of weeks. Seems whatever I do I stuff up. I don't know what I am going to do. I am broke now and probably don't have a job. Who will ever employ someone like me. I have done some minor things that have blown out to be something big, I am falling further but who cares.

One good thing is I have a new girlfriend. Been seeing here a couple of months now. I enjoy spending time with her and doing stuff.

Next month I am off to Brisbane again for my check ups and also that test with the camera down my throat to my small bowel to see why I have lost so much weight. I am a bit concerned about that test, but it will show if anything is wrong but if there is there in nothing I can do about it. Just something else to worry me.

I just wish it was all over. Next month is not going to be any better I can feel it already.

Monthly visit to Brisbane Consultants

That month goes so fast. I have just returned from Brisbane on Wednesday. All my blood and urine tests are done a week before we go down. They were all good. Well good for me anyway nothing drastic. No change in the prednisone dose. Still 3mg. Renal results, back up to 65% function, two weeks before had dropped to 40%. Seems that I need to drink more water as dehydrating can affect the results apparently. I now have to do these tests every two weeks and have the results sent to Brisbane.

The only problem at the moment is my weight loss. I have been eating anything and everything but I lost another 1.5 kg. I now weigh 59kg. Last month I lost 6.5kg I am 178cm tall. I really need to buy some new clothes and they are all to big. Even taking prednisone this is happening. My main consultant that manages me is making a booking for me to have a camera down my throat just to check and see if anything is happening. He said they will probably find nothing but they have to check it. I am the unknown. Maybe I am meant to be this skinny. Some of my friends are calling me rag. I just hang there.

Other than that it was a good result. They are also talking about after the next one then maybe only seeing them every two months. I hope so. I know I am costing my family heaps and all the time I have off work must be hard on my boss. I am not exactly what you can call reliable. So next visit to Brisbane is depending on a letter about that camera test when it can be done and they will book consultant appointments for the same time.

In the meantime I have been enjoying the warmer weather and swimming at the beach. I haven't been swimming for so long. A sh## bag hanging off you guts isn't the best. I am so glad that it is gone. I had a dream the other night that it was still there. Actually it was a nightmare.

Well I am off to bed. There is a whole new day tomorrow and i have some plans to enjoy it.

Camera and wallet back

I feel great. I have been working hard and getting out a fair bit. Weekends go so fast but I fit as much in as I can. Stangely I got my video camera and wallet back. Not together. The wallet was left in the mailbox. License and cashcard there but the cash gone. At least I got something. But I don't know who really took it. I think I know but I can't prove it.

Video camera was left on our driveway. Tape gone and memory battery gone. But we got a new one and charged it up and it works. So new tape in and even though it is scratched at least it works.I know who took it, but they denied it. Then they said they did take it but bought it back a few days after. But it didn't show up here until three weeks later. Strange.