Thursday, 7 November 2013

12 days in

So its day 12 of my kidney Transplant everything so far is going great my Creatinine levels have dropped from 680 and stayed down around 100 - 120 and thats really good apparently also im peeing 100ml-120ml an hour my bladder needs to stretch a bit that also takes time .
So since iv been discharged from the hospital i have to now come to the hospital every day for the next 5 weeks and get a blood test and then do all my stats and weight also some urine test and then see the doctor/Kidney specialist the worst bit is waiting for the doc to come and see you but that's a small price to pay . after the 5 weeks are up ill go to the "A.R.T.S" i think it means (Australian Renal Transplant Services) building for the remainder of my time in brisbane hopefully reduceing my days to 3 times a week then 2 times a week 
Every day it,s getting easier and easier to walk "PEE" and get up and down im just a bit Bloated in the gut area but that's to be expected for a while. i will keep you all posted and i will get some photos up soon. Trev.

Thursday, 31 October 2013

2013 Update Wedding bells and Kidneys

Hi everyone i have alot to tell you all so much has happened i don't know where to start ..
 I recently got married to the love of my life Louisa it was a picture perfect day at Tannum Sands lookout we had quite a few people came. We brought our own home and moved in then 8 days later i receive a late night phone call telling me that i have a kidney waiting for me in Brisbane and i should catch the next flight down . Its been a long wait and a hard struggle but finally here i am sitting in the PA hospital with a kidney that has given me a new lease of life. Hopefully with a new kidney I will be able to go away on holidays for more than two days, go swimming, and go back to work full time but mainly be a lot healthier . To the family that have given me this opportunity i will be eternally grateful. Now we've just go to make sure that it doesn't reject ..so i have to take my tablets all the time!! Hopefully we can keep the Wegners at bay!! .to be continued

Sunday, 18 December 2011

Well its back with a Vengence

So whats been happening to me lately:

Well severe chest pains started at home in Gladstone, we went to Gladstone Hospital ER and worked out it wasn't a heart attack but I knew something was happening. After an xray then follow up CT Scan the next morning i had lesions on my lungs of some sort. The next day I went to Rocky for dialysis and I requested anchor blood tests be done " Takes 3 days or more for those to get back "

Still with chest pain I was given a course hard antibotics as not sure what was happening, but awaiting results. On the Tuesday I went to Rocky for my dialysis session feeling shit, and got the results of the blood tests, the Wegners was back, my reading was +160. Doctors sent me to RBWH via RFDS...

And after not much debate and a few more CT scans it was determined that my Wegners was active again and the doctors went into full swing trying to get on top on it before it does to much damage.

The wegners had devoloped 2 large leishons on my lungs and they started to hemrage and bleed i had a shocking night my Stats droped rapidly i became oxygen Dependent and coughed up alot of blood.

With that I ended up in ICU for 6 days, with lots of meds and the assistance of the BPAP machine a machine that forces air into your lungs I managed to process from ICU back to the ward, alothough I was still recieving dialysis and plasma pherisis daily.

Within approx 7 hours of being in the ward I was seriously ill again, so instead of my lungs this time its was my belly I was in excrutitating pain and the nurses were only offering pandol and my pain score was an 8 ... unfair right. I called my gf and mum to come up it was 2am in the morning and I needed them as noone was listening. When they arrived things finally started to happen I was given drugs and taken for an xray a ct scan and seen by all the doctors but it was 9am when my pain was finally under control and I was given a nasal gastric tube and told that i had a bowel obstruction. Just what I wanted!! This is happening in the same order as last time my disease attacked I just hope it isnt as bad. Im still recieiving treatment in the RWBH and will be spending christmas in hospital luckily I have my family all here supporting me.

Anyway what else has been going in my life ...there are good things so wegners sufferers out there realise for all the times we struggle we get a bit more of the good times to :)

So Ive been trying to do things on my bucket list this year, its never to early to start. Ive been skydiving with my big bro and friends it was amazing. I managed to go back to work even if it was only on non dialysis days. I worked on an old 79 fairlane a V8 finally. I moved it to my girl friends house and hopefully well be well on the way to starting a life together. My fistuals fully functioning and been a great acess during this treatment.


Anyways Ill fill you all in when Im out of here and let you know what happens.

Wednesday, 30 November 2011

Working Fistular

Any whoo i had a Fistular created in my left arm this was the 5th attempt!!! and yes they got it right this time.. 58 staples and a 30 cm scar .. iv been useing it for dialysis for a while now and have had no such probloms also i got my permacath taken out its been in my chest for a good 15 months or so .. so i can go swimming and skydiveing


speaking of skydiveing
i did the big 14000ft jump in Hervey Bay NOV/20th
did it with some friends heres the link to my jump got the whole thing on video enjoy haha Trev's Skydive.


To Be Continued for now sleep :)

Sunday, 10 April 2011

3Rd Time lucky







Well here i am again Finding myself in Brisbane Hospital yet AGAIN.
It's another infection of some sort related to the Perma'Cath i have in my chest for dialysis
none of this would have happen had the surgeon from Brisbane hurried up and done my fistula
but hey beggars cant be choosers hopefully i will get it done soon :) and get this infection cleared up asap..
On a Much better note i got a girlfriend ( LOUISA ) aka Cake Ass .She is very supportive and Pretty he-he ill upload some picks ^^ from new years in Rockhampton had heaps of fun that night..
And together with the help of my mother we have launched a campaign to get Dialysis in Gladstone
here is the web address if you are interested in helping us www.TrevZplace.com . We also have T-Shirts available SOON.. And we..... Well Louisa recently attended the Local calliope football match with our banners and shirts and petitions and managed to get Approximately 550 Signatures Thankyou heaps Louisa/Jodie/and others :). I cudent make it because i was being flown via RFDS to Brisbane because of this infection . any way for more info on upcoming events go to my website.. heres some pictures from the event.

Tuesday, 8 February 2011

Tuesday, 1 February 2011

Im on Dialysis !!




Well I am finally updating my blog .. iv been oh so slack ha ha so much to say ... any ways whats happened since i last posted .. A LOT! and not all is good news .. well as it turned out my Wegner's came back for another little stint .. it attacked my kidneys causing me end stage renal failure .. and now I am on Dialysis 3 days a week and as our town does not have dialysis i travel 220klm round trip every Tuesday Thursday and Saturday its very hard to get there and back and Really frustrates me because Gladstone .. where i live is growing really fast we have a hospital and we have many dialysis patients but still no dialysis unit here i have set out on my own little adventure to try and bring Gladstone Dialysis .. here is the link its only on facebook so far . Trev's campaign
.. Please take the time to have a look at this and support us

.. any way back to telling you all whats happen
on a better note i got to go to the Summer Nationals in Canberra with my dad i have all ways wanted to go and it was a pretty big job organizing dialysis in Canberra but mum sorted that out and it was not to much trouble for me i all-so have some pictures from
there . on here Big Day Out on the Gold Coast i was suppost to stay on the coast ( the picture top left ) but i was sick in hospital and i got an infection in my per-ma cath lines and they kept me in and gave me a day pass for big day out. :) i had a blast and got to spend bulk time with Louisa shes a really close friend to me she means alot to me as-well. :) but even out of hospital i managed to end up in the medical tent ( The picture top Right ) .. my dressing fell off my per-ma cath wound and louisa was freaking out about it humm .


so much more to say but so little time to wright ill add to this asap .. :) Thanks for taking the time to read my Blog

Tuesday, 17 August 2010

Well its been a long time since i have posted anything on here as i am currently in RBWH i have found time to wright any ways to get to the point things in my life were all looking up i have managed to get my drivers license back and also get a full time job spray painting and brought myself a ute . also moving into a house in town soon im now single tho .. humm its ok i guess haven't been single for a long time but yeah any ways i just had my 20th birthday just a casual bbq with close friends and i also started to play rugby league for the calliope roosters they dident think i shud play because of my medical conditions but i got a clearance from my doc and i have played 2 games now the season is over and i will be signing up next year . but yet again wegners beats me down . on the 8/08/2010 i get the RFDS from Gladstone hospital to Brisbane and they admit me .. this time its my kidneys i was a little bit bloated i put on a fair bit of weight according to the blood-tests my kidneys are barely working and they put me on dialysis..ill wright the rest of this tomorro im tired and its late ..

The weakest link! kidneys

Well its been a long time since i have posted anything on here as i am currently in RBWH i have found time to wright any ways to get to the point things in my life were all looking up i have managed to get my drivers license back and also get a full time job spray painting and brought myself a ute . also moving into a house in town soon im now single tho .. humm its ok i guess haven't been single for a long time but yeah any ways i just had my 20th birthday just a casual bbq with close friends and i also started to play rugby league for the calliope roosters they dident think i shud play because of my medical conditions but i got a clearance from my doc and i have played 2 games now the season is over and i will be signing up next year . but yet again wegners beats me down . on the 8/08/2010 i get the RFDS from Gladstone hospital to Brisbane and they admit me .. this time its my kidneys i was a little bit bloated i put on a fair bit of weight according to the blood-tests my kidneys are barely working and they put me on dialysis.

Sunday, 19 April 2009

Still alive and kicken

My mum came round early this morning got me outa bed. I forget it was her birthday today, but she came to remind me to post here. Been gonna for awhile but jst never got to it. I didnt realize it had been so long evey day just runs into another.

Usualy it is my friend who helps us out with things, but he died. I grew up with him always around. Yesterday was the last time I went to his place. We took his ashes. I used to visit him when I could, my car broke so I hadn't been there for ages. but he was staying with mum anyway. Some of his internet friends sent some money through mum to help with some costs. Others I know get unemployment benefits but I don't because I can't work fulltime so mum pays for all she can. I want to thank you it is hard to as I dont no you. Mum went to give it all to me in one lump as you sent it to me but I would only waste it. We did buy some food but I asked mum to look after it. I have to go to Brisbane soon so we will need some money to get there and home again. i dont think about it as everyday is really just enother day

I havent been to docs for a long time now but im still here. Had hernia op just after my birthday last year. No problems now with it. Still got my girlfriend and we both turn 19 this year haha. Still play xbox live sometimes don't have my car anymore. Well I still have it but it has a broken diff. It has been off the road now for months deregistered. Trying to sell it but who woud buy it. All my subs and CD player are still in it. They work so some one might buy it just for the beatbox haha

Thursday, 29 May 2008

Hi guys well its nearly the start of June and its nearly my girlfriends birthday she will be 18 on the 31st .. yay :) . Any way things are looking up, I finally got a few members on my forum and
I even added a chat box u might catch me on it :D .

Now what have I been up to, well a fair bit since i last posted ... I bought some new speakers for my car and a CD player. I managed to install them all by myself ...:O haha Apart from that I have been making my forum and playing my xbox .

My concerns :
Fuel Prices: Well the price of fuel is really high here it is like $1.58 a litre!
My hernia: I have just learnt it is because I gained and lost so much weight, and it is common in weggies to get them. So yeh yet another blow haha. But like I said, things are looking up. Anyway I am going to Brisbane for checkups on the 30June .. wish me luck thats it for now people I am going to spend the day playing xbox haha :D

Sunday, 18 May 2008

Living but Bored :P

Hi guys/girls I have just found something to fill in my long hours of boredom. So if you want to talk to me u will prob find me on there
Join my new forum I have created by clicking here >TREVS FORUM.. this is what I do in my spare time now :D . Trev> .. ps I am looking for some admin to help

Saturday, 17 May 2008

Still here

It’s been ages since I last posted here. But things are looking up sort of. Now what have I been up to. What have I been up to? Not much. I have moved into town in a unit. Saves petrol LOL I spend most days playing xbox and watching dvds. Not really exciting.

Health wise. Could be better. I went to Brisbane last month for checkups and seems that my lungs are not working as well as before. So now on ventilion. I have had my hearing tested again as well, decreased since last test in 2006 one ear the other they say is OK. But last week a hernia appeared, well that is what they think it is. Back to the doctors on Monday to see what they are going to do about it. Probably surgery sometime. But in the meantime I am taking it easy.

Looking forward to my girlfriends 18th in a couple of weeks. Then it won’t be long until mine.

Not much exciting has happened to me so not much to say except I am still around.

Sunday, 25 November 2007

Made it to Prom Night

This would have been my prom night, but I haven't been to school for 3 years. So I escorted my girlfriend to the Prom. Went to the after party and had a great time.

Wednesday, 31 October 2007

Not a good month

Well I had a shocker of a month. Things aren't going the best due to many things that have gone wrong. Health is OK no problems, but everything seems to be getting on top of me.

I haven't been to work for a couple of weeks. Seems whatever I do I stuff up. I don't know what I am going to do. I am broke now and probably don't have a job. Who will ever employ someone like me. I have done some minor things that have blown out to be something big, I am falling further but who cares.

One good thing is I have a new girlfriend. Been seeing here a couple of months now. I enjoy spending time with her and doing stuff.

Next month I am off to Brisbane again for my check ups and also that test with the camera down my throat to my small bowel to see why I have lost so much weight. I am a bit concerned about that test, but it will show if anything is wrong but if there is there in nothing I can do about it. Just something else to worry me.

I just wish it was all over. Next month is not going to be any better I can feel it already.

Friday, 21 September 2007

Monthly visit to Brisbane Consultants

That month goes so fast. I have just returned from Brisbane on Wednesday. All my blood and urine tests are done a week before we go down. They were all good. Well good for me anyway nothing drastic. No change in the prednisone dose. Still 3mg. Renal results, back up to 65% function, two weeks before had dropped to 40%. Seems that I need to drink more water as dehydrating can affect the results apparently. I now have to do these tests every two weeks and have the results sent to Brisbane.

The only problem at the moment is my weight loss. I have been eating anything and everything but I lost another 1.5 kg. I now weigh 59kg. Last month I lost 6.5kg I am 178cm tall. I really need to buy some new clothes and they are all to big. Even taking prednisone this is happening. My main consultant that manages me is making a booking for me to have a camera down my throat just to check and see if anything is happening. He said they will probably find nothing but they have to check it. I am the unknown. Maybe I am meant to be this skinny. Some of my friends are calling me rag. I just hang there.

Other than that it was a good result. They are also talking about after the next one then maybe only seeing them every two months. I hope so. I know I am costing my family heaps and all the time I have off work must be hard on my boss. I am not exactly what you can call reliable. So next visit to Brisbane is depending on a letter about that camera test when it can be done and they will book consultant appointments for the same time.

In the meantime I have been enjoying the warmer weather and swimming at the beach. I haven't been swimming for so long. A sh## bag hanging off you guts isn't the best. I am so glad that it is gone. I had a dream the other night that it was still there. Actually it was a nightmare.

Well I am off to bed. There is a whole new day tomorrow and i have some plans to enjoy it.

Sunday, 16 September 2007

Camera and wallet back

I feel great. I have been working hard and getting out a fair bit. Weekends go so fast but I fit as much in as I can. Stangely I got my video camera and wallet back. Not together. The wallet was left in the mailbox. License and cashcard there but the cash gone. At least I got something. But I don't know who really took it. I think I know but I can't prove it.

Video camera was left on our driveway. Tape gone and memory battery gone. But we got a new one and charged it up and it works. So new tape in and even though it is scratched at least it works.I know who took it, but they denied it. Then they said they did take it but bought it back a few days after. But it didn't show up here until three weeks later. Strange.

Tuesday, 28 August 2007

Thought I would try to upload a video

I was just mucking around and saw that you can upload videos. So I thought I would give it a try. I have not got any recent ones because the video camera I got for my birthday last month got stolen and I only had it for two weeks. I wish the people who stole it would give it back.

This is a video of me fishing back in the beginning of the year. We were having fun catching sharks.


I have been eating heaps. Also going to work everyday since I got back from Brisbane. I went to a 4WD day on the weekend. Missed my video camera, could have showed here what we watched. It was Exteme Competition.

Wednesday, 22 August 2007

Back home again

We flew home today. Glad to be back.

I knew it, the doctors weren't happy with a few things. Weight loss - now I have to write down everything I eat, whatever it is for the next two weeks, then fax it down to my consultant.

Kidneys - protein loss improved greatly, but kidney function took a dive, and now I have low blood pressure. He has no idea what has happened. Took me off the latest tablet he put me on. I have to be retested in two weeks, if no change he wants me back in Brisbane before my normal appointment. I am getting pretty sick of all this. Why can't I be normal ha what is normal. It is frustrating not knowing what is happening to me.

I just want to forget about it. I do try hard.

Tuesday, 21 August 2007

Back in Brisbane again.

A month has gone so fast. I haven't been home much and when I have I have been sleeping. So now that I am sitting around at RMH between appointments I will update my blog.

What have I been doing? Driving, 4WDing. I got a permit for a beach near where I live. So most weekends I am there camping. I bought new tyres for my car. Now I am broke. I also haven't been to work much. I don't know why. I just can't see any future at the moment. Everything I do never turns out. I have had my video camera stolen, I got it for my birthday. Only had it two weeks and someone took it. I lost my wallet with $50 in it that wasn't my money, but given to me to pick up a car part the next day. It also had my drivers license and bank card in it. So I had to cancel the card and get a new replacement license. That cost me $26. Seems everything I do these days goes wrong. I am just fed up with everything. I feel like punching something. I just loose it in a snap.

I am back in Brisbane for a bone scan and my consultants visit. I was weighed this morning for the bone scan, I have lost 7 kg in a month. My consultants this afternoon I don't think are going to like that. I now weigh 56kg. But I also have a flu, so this might be the problem. But I can't eat much. I feel really hungry, start eating but after a couple of mouthfulls, I feel full. If I eat more I feel sick.

Nearly time to go so I will post later.