So its day 12 of my kidney Transplant everything so far is going great my Creatinine levels have dropped from 680 and stayed down around 100 - 120 and thats really good apparently also im peeing 100ml-120ml an hour my bladder needs to stretch a bit that also takes time .
So since iv been discharged from the hospital i have to now come to the hospital every day for the next 5 weeks and get a blood test and then do all my stats and weight also some urine test and then see the doctor/Kidney specialist the worst bit is waiting for the doc to come and see you but that's a small price to pay . after the 5 weeks are up ill go to the "A.R.T.S" i think it means (Australian Renal Transplant Services) building for the remainder of my time in brisbane hopefully reduceing my days to 3 times a week then 2 times a week
Every day it,s getting easier and easier to walk "PEE" and get up and down im just a bit Bloated in the gut area but that's to be expected for a while. i will keep you all posted and i will get some photos up soon. Trev.
Thursday, 7 November 2013
Thursday, 31 October 2013
2013 Update Wedding bells and Kidneys
Hi everyone i have alot to tell you all so much has happened i don't know where to start ..
I recently got married to the love of my life Louisa it was a picture perfect day at Tannum Sands lookout we had quite a few people came. We brought our own home and moved in then 8 days later i receive a late night phone call telling me that i have a kidney waiting for me in Brisbane and i should catch the next flight down . Its been a long wait and a hard struggle but finally here i am sitting in the PA hospital with a kidney that has given me a new lease of life. Hopefully with a new kidney I will be able to go away on holidays for more than two days, go swimming, and go back to work full time but mainly be a lot healthier . To the family that have given me this opportunity i will be eternally grateful. Now we've just go to make sure that it doesn't reject ..so i have to take my tablets all the time!! Hopefully we can keep the Wegners at bay!! .to be continued
I recently got married to the love of my life Louisa it was a picture perfect day at Tannum Sands lookout we had quite a few people came. We brought our own home and moved in then 8 days later i receive a late night phone call telling me that i have a kidney waiting for me in Brisbane and i should catch the next flight down . Its been a long wait and a hard struggle but finally here i am sitting in the PA hospital with a kidney that has given me a new lease of life. Hopefully with a new kidney I will be able to go away on holidays for more than two days, go swimming, and go back to work full time but mainly be a lot healthier . To the family that have given me this opportunity i will be eternally grateful. Now we've just go to make sure that it doesn't reject ..so i have to take my tablets all the time!! Hopefully we can keep the Wegners at bay!! .to be continued
Sunday, 18 December 2011
Well its back with a Vengence
So whats been happening to me lately:
Well severe chest pains started at home in Gladstone, we went to Gladstone Hospital ER and worked out it wasn't a heart attack but I knew something was happening. After an xray then follow up CT Scan the next morning i had lesions on my lungs of some sort. The next day I went to Rocky for dialysis and I requested anchor blood tests be done " Takes 3 days or more for those to get back "
Still with chest pain I was given a course hard antibotics as not sure what was happening, but awaiting results. On the Tuesday I went to Rocky for my dialysis session feeling shit, and got the results of the blood tests, the Wegners was back, my reading was +160. Doctors sent me to RBWH via RFDS...
And after not much debate and a few more CT scans it was determined that my Wegners was active again and the doctors went into full swing trying to get on top on it before it does to much damage.
The wegners had devoloped 2 large leishons on my lungs and they started to hemrage and bleed i had a shocking night my Stats droped rapidly i became oxygen Dependent and coughed up alot of blood.
With that I ended up in ICU for 6 days, with lots of meds and the assistance of the BPAP machine a machine that forces air into your lungs I managed to process from ICU back to the ward, alothough I was still recieving dialysis and plasma pherisis daily.
Within approx 7 hours of being in the ward I was seriously ill again, so instead of my lungs this time its was my belly I was in excrutitating pain and the nurses were only offering pandol and my pain score was an 8 ... unfair right. I called my gf and mum to come up it was 2am in the morning and I needed them as noone was listening. When they arrived things finally started to happen I was given drugs and taken for an xray a ct scan and seen by all the doctors but it was 9am when my pain was finally under control and I was given a nasal gastric tube and told that i had a bowel obstruction. Just what I wanted!! This is happening in the same order as last time my disease attacked I just hope it isnt as bad. Im still recieiving treatment in the RWBH and will be spending christmas in hospital luckily I have my family all here supporting me.
Anyway what else has been going in my life ...there are good things so wegners sufferers out there realise for all the times we struggle we get a bit more of the good times to :)
So Ive been trying to do things on my bucket list this year, its never to early to start. Ive been skydiving with my big bro and friends it was amazing. I managed to go back to work even if it was only on non dialysis days. I worked on an old 79 fairlane a V8 finally. I moved it to my girl friends house and hopefully well be well on the way to starting a life together. My fistuals fully functioning and been a great acess during this treatment.
Anyways Ill fill you all in when Im out of here and let you know what happens.
Well severe chest pains started at home in Gladstone, we went to Gladstone Hospital ER and worked out it wasn't a heart attack but I knew something was happening. After an xray then follow up CT Scan the next morning i had lesions on my lungs of some sort. The next day I went to Rocky for dialysis and I requested anchor blood tests be done " Takes 3 days or more for those to get back "
Still with chest pain I was given a course hard antibotics as not sure what was happening, but awaiting results. On the Tuesday I went to Rocky for my dialysis session feeling shit, and got the results of the blood tests, the Wegners was back, my reading was +160. Doctors sent me to RBWH via RFDS...
And after not much debate and a few more CT scans it was determined that my Wegners was active again and the doctors went into full swing trying to get on top on it before it does to much damage.
The wegners had devoloped 2 large leishons on my lungs and they started to hemrage and bleed i had a shocking night my Stats droped rapidly i became oxygen Dependent and coughed up alot of blood.
With that I ended up in ICU for 6 days, with lots of meds and the assistance of the BPAP machine a machine that forces air into your lungs I managed to process from ICU back to the ward, alothough I was still recieving dialysis and plasma pherisis daily.
Within approx 7 hours of being in the ward I was seriously ill again, so instead of my lungs this time its was my belly I was in excrutitating pain and the nurses were only offering pandol and my pain score was an 8 ... unfair right. I called my gf and mum to come up it was 2am in the morning and I needed them as noone was listening. When they arrived things finally started to happen I was given drugs and taken for an xray a ct scan and seen by all the doctors but it was 9am when my pain was finally under control and I was given a nasal gastric tube and told that i had a bowel obstruction. Just what I wanted!! This is happening in the same order as last time my disease attacked I just hope it isnt as bad. Im still recieiving treatment in the RWBH and will be spending christmas in hospital luckily I have my family all here supporting me.
Anyway what else has been going in my life ...there are good things so wegners sufferers out there realise for all the times we struggle we get a bit more of the good times to :)
So Ive been trying to do things on my bucket list this year, its never to early to start. Ive been skydiving with my big bro and friends it was amazing. I managed to go back to work even if it was only on non dialysis days. I worked on an old 79 fairlane a V8 finally. I moved it to my girl friends house and hopefully well be well on the way to starting a life together. My fistuals fully functioning and been a great acess during this treatment.
Anyways Ill fill you all in when Im out of here and let you know what happens.
Wednesday, 30 November 2011
Working Fistular
Any whoo i had a Fistular created in my left arm this was the 5th attempt!!! and yes they got it right this time.. 58 staples and a 30 cm scar .. iv been useing it for dialysis for a while now and have had no such probloms also i got my permacath taken out its been in my chest for a good 15 months or so .. so i can go swimming and skydiveingspeaking of skydiveing
i did the big 14000ft jump in Hervey Bay NOV/20th
did it with some friends heres the link to my jump got the whole thing on video enjoy haha Trev's Skydive.
To Be Continued for now sleep :)
Sunday, 10 April 2011
3Rd Time lucky
Well here i am again Finding myself in Brisbane Hospital yet AGAIN.
It's another infection of some sort related to the Perma'Cath i have in my chest for dialysis
none of this would have happen had the surgeon from Brisbane hurried up and done my fistula
but hey beggars cant be choosers hopefully i will get it done soon :) and get this infection cleared up asap..
On a Much better note i got a girlfriend ( LOUISA ) aka Cake Ass .She is very supportive and Pretty he-he ill upload some picks ^^ from new years in Rockhampton had heaps of fun that night..
And together with the help of my mother we have launched a campaign to get Dialysis in Gladstone
here is the web address if you are interested in helping us www.TrevZplace.com . We also have T-Shirts available SOON.. And we..... Well Louisa recently attended the Local calliope football match with our banners and shirts and petitions and managed to get Approximately 550 Signatures Thankyou heaps Louisa/Jodie/and others :). I cudent make it because i was being flown via RFDS to Brisbane because of this infection . any way for more info on upcoming events go to my website.. heres some pictures from the event.
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